A conversation with an autistic person (with Megan Neff)
1. Develop a Sensory Lens
When interacting with autistic people, develop a sensory lens by considering the sensory demands of activities (e.g., loud restaurants) or personal choices (e.g., wearing perfume), as this is a kind way to be inclusive and avoid causing discomfort like migraines.
2. Communicate Plans in Advance
Provide advance notice for changes to plans or routines when interacting with autistic individuals, as unexpected changes can cause significant anxiety and irritability because their brain is frantically trying to adjust.
3. Be Direct and Honest
Communicate directly and honestly, avoiding innuendos or implied meanings, especially when asked for feedback or if an autistic person senses something is off, as this helps prevent confusion and builds trust.
4. Explore Self-Identification Deeply
If you suspect you are autistic, engage in a deep, intensive process of learning by taking online screeners (as one data point), reading research, and seeking out autistic voices, rather than relying on a few social media reels, to ensure accurate self-understanding.
5. Understand Masking’s Internal Cost
Recognize that outward behavior may not reflect an autistic person’s internal experience; masking can hide significant internal struggles like dissociation, mental health conditions, or exhaustion, which are important to consider for diagnosis and support.
6. Utilize Stimming for Regulation
If autistic, engage in stimming (repetitive body movements, listening to music on repeat, organizing) to self-soothe, manage anxiety, excitement, or release stress, especially in overwhelming sensory environments, as it creates a predictable sensory feedback loop.
7. Acknowledge Monotropic Focus
Understand that autistic individuals often thrive in singular, deep focus (monotropic focus) and may find environments or situations requiring split attention highly stressful, which impacts their processing speed and ability to engage.
8. Respect ‘Islands of Inflexibility’
Recognize that autistic individuals may exhibit intense attachment to specific ways of seeing the world, values, or routines, which can manifest as ‘islands of inflexibility’ and cause anxiety or irritability when unexpected changes occur.
9. Reframe Communication Difficulties
Understand the ‘double empathy problem,’ where communication challenges between autistic and non-autistic individuals are a two-way street due to different neurological makeups, rather than solely a deficit in autistic empathy.
10. Avoid Superpower/Tragedy Rhetoric
When discussing autism, avoid ‘superpower’ or ’tragedy’ rhetoric, as it can minimize the challenges or strengths of the autistic experience, instead acknowledging both the strengths and difficulties without invalidating diverse experiences.
11. Embrace Nuance in Autism Discussion
Hold space for nuance in discussions about autism, recognizing that some autistic individuals may wish for a ‘cure’ due to suffering, while others embrace it as a difference, and both perspectives are valid.
12. Understand Bottom-Up Processing
Recognize that autistic individuals often process information bottom-up, focusing on details first to build a unifying theory, which can make learning new systems intensive but also leads to deep understanding.
13. Consider Emotional Impact for Diagnosis
When considering an autism diagnosis, especially for adults, remember to factor in the emotional impact of masking and navigating neurotypical spaces, as this can lead to significant mental health struggles even without overt functional impairment.
14. Use Object-Based Conversation
When conversing with autistic individuals, try using object-based conversation (talking about ideas, objects, or a focal point) as it tends to be an easier entry point than social-based small talk or questions about personal life.
15. Insight 15
If you are a clinician, avoid getting too tied to thinking about autism solely as a behavior, and instead delve deeper into the subjective internal experience of the person to avoid misdiagnosis, especially regarding behaviors like eye contact.